I came across the write-up on my 2001 recovery in the Townsend Letter online here. The key aspect cited in the article still applies: “eliminate the infection(s) that cause the antibodies, eliminate items that trigger coagulation; get assistance in reducing coagulation”
There have been some refinements on the meaning of these words — the infections have been expanded to include invasive gut bacteria (which are indeed infections).
There have been significant viable alternatives to the treatment components. Some of these changes are needed — for example, infection-specific transfer factors have disappeared from the market place. Another change is the PubMed publication of many studies of traditional medicines that appear to be as effective as prescription antibiotics and antivirals. The options for prescription treatment have not changed. The options for “alternative” treatment have increased greatly.
In 2000, I was injecting low dosage heparin, a prescription item — today, boswellia has been reported in at least one study as being as effective as heparin! Yes! No track marks from shooting up daily! 😉
In 2000, I had to take a prescription from my MD to Canada to get Lumbrokinase, a substance that dissolves fibrin deposits. Today, it is available on many web sites without prescription.
In 2000, I used a CFS patient in the Czech Republic to get Piracetam (where it was available over the counter). In most of Europe, it was prescription only. In the US, it was not available (except by specialized compounding pharmacies).
Unfortunately, I am still needing to drive to Canada — but this time it is to get Mutaflor, the E.Coli Nissle 1917 probiotic. The FDA deems it to be a drug at present which require years of effort to get approved for sale. In Canada and Europe, it may be easily ordered. It has been used since 1917 (just 95 years!).
Unfortunately, many of the traditional medicines are not easily available. Fortunately, many of them are available as spices and herbs from East Indian suppliers in the US in one pound bags. The pill making is a frequent evening activity.
This remains an inconvenient disease to treat!
However, the critical problem remains unchanged from 2000 — finding a MD that willing to venture off “standard medical treatment” (for CFS, this means prescribing pain killers as needed). A MD willing to enter the world of non-pharmaceutics (i.e. herbs, spices and other things) as well as going against the current fad of minimizing antibiotics usage (which may still be needed if traditional medicines are ineffective)..