Sorry we do not write protocols…

Recently I was asked to write out my protocol — a protocol is a cookbook or recipe to follow.  All that I can give is really an approach.. to give a simple everyday example:

“Take a slab of flesh, add some alcohol and spices, let cook for a while and then serve.”

The flesh could be fish, beef, pork, lamb, snails or even grasshoppers! The alcohol could be wine (red, white, port, sherry, brandy etc), spices could be salt, pepper, chili peppers, etc.  Does the recipe create an excellent meal?  Well…. yes and no. Does my protocol result in remission? The same yes and no.

For CFS (and most IBD), the flesh is an assortment of different bacteria that varies from person to person. Alcohol are antivirals and antibiotics. Spices are supplements which may include real world herb and spices. “Let cook for a while” often means heat (discomfort aka die off, herx) which may occur in cycles…

According to the Literature

The following are from PubMed studies finding firm evidence of improvement

The following appears to help in some cases

  • Alpha Lipoic Acid
  • Ashwagandha
  • B12
  • Boswellia
  • Escherichia Coli Nissle 1917
  • Folate
  • FOS
  • Mastic Gum
  • Omega-3
  • Rosavin (Rhodiola)
  • Salt (Sodium Chloride)
  • Turmeric
  • Vitamin D (you want to get near the TOP of the normal range– to the point that your MD or ND asks you to stop supplements with some concern in their voice!)
  • Vitamin C

According to my recent experience

Note that I intentionally do not give dosages — for many spices, I will go up to 6 gm/day. Dosages should be decided in consultation with your medical professionals. Many items may cause die off. Some items do not get along with other items.

  • Haritaki
  • Neem
  • Tulsi
  • Prescript Assist
  • Lactobacillus Reuteri
  • Alpha Lipoic Acid
  • Ashwagandha
  • Boswellia
  • B12 and Folate Methyl versions may be more effective for some
  • Coenzyme Q10
  • Fish Oil (Omega-3)
  • Licorice (Glycyrrhiza): 2 8 gm/ day
  • Vitamin D: 10,000 to 20,000 IU/day until levels exceeded 50 ng/mL (125 nmol/L)
  • FOS should be taken with probiotics
  • FOS from rye is preferred (i.e. 100% Rye bread)
  • 85+% Chocolate (85%) (2–3 oz/day) (Good for morale!)
  • Goat Cheese (1 oz 3 times a day) or other Neu5gc sugar
  • Mutaflor (E. Coli Nissle 1917)
  • Lactobacillus Rhamnosus
  • Turmeric starting at 300 mg, increasing up to 8 gm
  • Bishop Weed (Ajwain Seeds)
  • Olive Leaf Extract
  • Monolaurin
  • Artemisia
  • Bromelain
  • EDTA
  • NAC (Acetylcysteine)
  • Serrapeptase
  • Nattokinase
  • Lumbrokinease