Data Downloads are now available

All of the user entered data is available for citizen scientists (as well as some AI scientists and statisticians with significant others having CFS). This was a promise that I made in collecting the data — make the data freely available without any human identifying information.

On the menu, you will see an Advance tab.

export

The first three are reference tables which will be similar from day to day. The 2nd three should always be downloaded/updated as a set (I randomize the SampleId daily to insure privacy).

I show an example of the data in each one below. Yes, for your data nerds, the data structure has been normalized.

Taxonomy CSV

Taxonomy id,Parent id,name,rank
201174,2,Actinobacteria,phylum
200795,2,Chloroflexi,phylum
1117,2,Cyanobacteria,phylum
74152,2,Elusimicrobia,phylum
1239,2,Firmicutes,phylum
32066,2,Fusobacteria,phylum

Symptoms CSV

Symptom id,Symptom Name
134,Asymptomatic: Live in house with person with probable microbiome dysfunction
132,Asymptomatic: Minor Health Issues (a few symptoms only)
131,Asymptomatic: No Health Issues
25,Autonomic Manifestations: nausea
29,Autonomic Manifestations: bladder dysfunction
31,Autonomic Manifestations: cardiac arrhythmias
124,Autonomic Manifestations: Cortisol disorders or irregularity
22,Autonomic Manifestations: delayed postural hypotension

Metabolites CSV

Metabolism id,Metabolism Name
39,Amino acid metabolism: Alanine aspartate and glutamate metabolism
35,Amino acid metabolism: Arginine and proline metabolism
49,Amino acid metabolism: beta-Alanine metabolism
34,Amino acid metabolism: Cyanoamino acid metabolism
45,Amino acid metabolism: Cysteine and methionine metabolism
48,Amino acid metabolism: D-Alanine metabolism
50,Amino acid metabolism: D-Arginine and D-ornithine metabolism
32,Amino acid metabolism: D-Glutamine and D-glutamate metabolism:

Sample To Symptom CSV

Sample id,Symptom Id
15302,1
15302,3
15302,4
15302,7
15302,8
15302,10

Sample to Metabolism CSV

Sample id,Metabolism Id,Value
108600,1,1.175
112695,1,1.175
197518,1,1.175

Sample to Taxonomy CSV

Sample Id,taxonomy id,Count Norm
215155,1,1014583
215155,2,1000000
215155,237,2614
215155,712,280
215155,724,280
215155,729,280
215155,815,158414
215155,816,158321
215155,818,155

Bottom Line

The data is there for any professional or amateur research to use. The greatest value comes when people provide their symptoms and copies the function/metabolites numbers into this shared repository.