Another reader shared their results and a little history. Two dominant symptoms matches the bacteria genus overgrowths.
Patient Summary
- Gradual onset starting at 18, 10 years now
- Suspected cause allergy vaccines
- Symptoms
- Severe insomnia,
- Acute stress in all situations.
- Candida, bloating, can not eat fiber or starches.
- All smells make me really really stress, and lack of thinking orientation etc.
- Low energy, muscle loss. From 84 to 66 kg.
- Hair loss… need mask for in to a shops etc and in polluted areas
- Tested positive for Epstein Barr (EBV) and Cytomegalovirus (CMV).
- I feel some relief with berberine and neem.
- Sacharomyces boulardii makes me anxious but after a while seems to help.
Basics Criteria
- As is very often seen with CFS uBiomes– Diversity at the top of the scale – 98%,
- statistically too often to be random.
- Bifidobacterium: 0
- Lactobacillus: 0
- Akkermansia: 1% of reference
- Low or no E.Coli
- Not directly reported, but it parent is: Enterobacteriaceae which is 2% of the reference group
Analysis of Over Growth by Bacteria Genus
- Erysipelatoclostridium (genus)
- Butyricimonas (genus)
- Adlercreutzia (genus)
- Sutterella (genus)
- Anaerosporobacter (genus)
- Oscillibacter (genus)
- Slackia (genus)
- Marvinbryantia (genus)
NUTRIENTS/ SUBSTRATES
INHIBITED BY
ENHANCED BY
- Partial Sleep Deprivation -1
- Berberine -2
- Chemotherapy – 4
- High protein diet – 4
- Walnuts – 5, 8
- Saccharomyces boulardii – 5, 8
- Resistant starch (type III) – 6
- Resistant starch (type II) – 6
- Resistant starch (type I) – 6
INHIBITS
- Bifidobacterium– 1,2,3, 5, 8
The amount of information that we have about these 8 high bacteria genus is not much. The “Partial Sleep Deprivation” hints that melatonin may be helpful (not just for sleep, but chemically) – but this is speculation. This overgrowth does agree with your symptom of severe insomnia.
“can not eat fiber or starches” — well, we see above that those enhances the over growths! Microbiome matches symptoms!
Very Elusive Bacteria
Given the thin data above, I moved on to this set of data
NUTRIENTS/ SUBSTRATES
INHIBITED BY
ENHANCED BY
INHIBITS
- Bifidobacterium – 2
Bottom Line
Make sure that flaxseed is a regular part of your diet, avoid walnuts, avoid dairy products and supplements containing Saccharomyces boulardii.
You may wish to stop berberine — have you tried Tulsi or Rosehip teas?
Continue or start with the usual supplements.. see:
- A Frugal List of Supplements — if cost constrained.
- Survey of Supplements — other CFS patients experiences
For “Acute stress in all situations” try Ashwagandha – I will research what else may help that and do a post later this week.
For hair loss, I have had informal reports that biotin (vitamin H) helps. Literature:
- Intestinal Dysbiosis and Biotin Deprivation Induce Alopecia through Overgrowth of Lactobacillus murinus in Mice.[2017]
- Serum Biotin Levels in Women Complaining of Hair Loss [2016].
- “Biotin deficiency was found in 38% of women complaining of hair loss. “
- “To date, there have been no clinical trials conducted to investigate the efficacy of biotin supplementation for the treatment of alopecia of any kind, nor has there been any randomized controlled trial to study its effect on hair quality and quantity in human subjects. ” [2017]
Reflection on Common Conventional Treatments
I have notices that Proton-pump inhibitors (PPI) and Saccharomyces boulardii (typically used as antifungal/anti-candida) keeps showing up in enhancers of the overgrowth. This raises the nasty question: “Have conventional treatments contributed to your CFS?“
Last — I will be researching a replacement for Saccharomyces boulardii treatment for candida and hopefully can produce a useful post.
CFS Remission 