An Experience resolving hypersomnia and unrefreshing sleep

I though that I should share a recent person experience.  Recently, I have had a relapse of Myalgic Encephalomyelitis/chronic fatigue syndrome. Technically, I do not have it since it has not lasted 6 months — whatever!

The cause was the same that triggered all prior ones — stress.

I should clarify stress better because is a vague word with many meanings. I have Autism spectrum, which translates for me to challenges with interpersonal interactions.  I have developed a lot of play-acting/conditioned responses/cooping strategies over the years and would fall well into the high functioning autism spectrum.  Stress coming from interpersonal interactions is the trigger — and not general stress. Having a high adrenaline situation is a non-problem for me — so being asked to deliver a massive software product in an unreasonable short period of time is not a problem for me at all. It is some other chemical (other than adrenaline) generated from the interpersonal interactions that is the food for the bad bacteria.

Short list of Symptoms

The first symptoms was going up to 10+ bowel movements a day and night sweats.

The following were seen intermittently this time around:

  • Emotional lapidity
  • Dizziness
  • Slur speech
  • Bouts of depression
  • Excessive tiredness
  • Recurrent sore throat
  • POTS
  • Slowness of thought
  • Heat intolerance

My strategy was simple — use the model that I preach! This meant trying to destabilize the gut intentionally so the bacteria shift that caused above does not stabilize. It also meant to aggressively remove the stress — not a “deal with it”. This translated into alternating weeks doing high dosages of:

  • Antivirals, antibiotic herbs: some examples at every meal taking several capsules each of:
    • Olive Leaf
    • Artemisinin
    • Tulsi
    • Haritaki
    • Monolaurin
    • Triphala
    • With items to breakdown biofilms and improve penetration
      • NAC
      • EDTA
      • Serrapetase
      • Lumbrokinease
      • Nattokinease
      • Bromelain
  • Probiotics – whatever was at hand but changing each week – it did not matter what, destabilization was the goal. Typically at least 100 BCFU at each meal
    • Bacillus
    • Lactobacillus
    • Bifidobacterium

Needless to say, I needed to take sick time and work from home days because of the herx/die off . Most of the above symptoms stopped appearing intermittently. 🙂

Brain Fog was eliminated by Neem

Happenstance had it that a study on brain fog and d-lactic acid crossed my screen. I checked up for items that would reduce the bacteria associated with it, and went to 3 “00” capsules of Neem with each meal (we make our own from organic neem powder we buy in bulk) . Within a few days the brain fog and other cognitive issues were fading rapidly. In the past, minocycline was the magic bullet for brain fog for me.

Hypersomnia and non-refreshing sleep appeared

The model says that there is a consortium of bacteria involved, with subsets creating certain symptoms.  Think of a criminal group — one group handles dope, another group obtains protection money, another group smuggle tobacco, etc.  You may shut down one of the operations and jail everyone involved — but the others continue.

I found that my sleep went 40-60% more than usual (up to 14 hours). This was easily tracked by my watch, an old Pebble smartwatch. Instead of starting the day awake and alert, I felt like I had gotten totally wasted drinking the prior day. The polite term would be non-refreshing sleep. This persisted for 2 weeks during which time I was heavy on the antivirals, antibiotic herbs.  At the end of that cycle, I decided to try a simple combination of mutually-support probiotics different than the ones above. A directed sniping instead of the broad shotgun approach with probiotics above.

The pair of probiotics were taken three times a day:

  • Symbioflor-2 (a collection of E.Coli probiotics) from Germany – 18 drops
  •  Bioflorin®  (Enterococcus faecium SF68  — originally classified as Streptococcus faecium SF68;)  from Switzerland – 2 capsules, 150 million CFU

Within a hour, I could feel something changed. Energy levels seemed to improve. That night, I slept much less. The following night, I was almost back to normal sleep patterns. And, I awoke fresh and alert — ready to take on the day. 

I will run hot for periods of the night with night sweats, so not 100% recovered.  Night sweats are my dominant symptoms now — that I can deal work with.

Bottom Line

The first question is simple — why did I not get uBiome or Thryve done before starting? The answer is simple — it would take too long to get the results. I perceived that the dysfunction was likely unstable and prone to fluctuations (since symptoms fluctured!).

My best ‘probe’ was to see if something caused die off or herx. If it did, I know that it was effective in controlling some abnormal overgrowth. If I turn lobster red after taking 500 mgs of regular niacin, that indicated that lots of toxins from dead bacteria was in my system (even if I did not herx). If I no longer get a niacin flush then it was time to move on to other things. It was also another indicator of progress.

Where I got my supplies — I am in the US.

  • For bioflorin, I recall that we eventually found a european pharmacy that would send it to us.  If you have friends or family in Europe, that may be the easiest route.
    • I have emailed (Paul’s mart above) asking if they would included it in their catalog. The more people that email and ask them, the more likely it would be added.
    • An alternative: is Enterococcus faecium DSM 16440 and a serving (12 drops) is 10-45 million CFU. Bioflorin capsules (Enterococcus faecium SF68)  are  75 million CFU each.

Source of the stress has been removed, and I am intentionally targeting a low stress situation for the next year…. I need to make sure that a healthy stabilization happens.

It looks like I will no longer need to take a cup full of pills around each meal. I will keep monitoring myself closely.

Experiment with lots of variations!

The bottom line is to have a plan and keep to it. There is great variability in the bacteria, in the above case, it was only after repeated weeks of eliminating bad bacteria (until there was no niacin flush) and then hitting it with the right good bacteria that success happened.

If the bad bacteria were still there, the good bacteria could have been quickly eliminated with the resulting “Nope — does not work” conclusion.